Case management

Reconstructing Lives :
A Case Manager's ToolKit 
By Vicki Gilman

Case managers often work with clients whose injuries have brought great complexity to their lives and where on initial assessment, there seems to be a plethora of aspects to capture in the initial report plus a raft of recommendations to put forward to support progress toward agreed goals or objectives. It is not a surprise therefore, for clients and families who may be faced with reading the reports to themselves feel quite overwhelmed by their complexity.

Then comes the point where recommendations and costs are agreed, and the case manager can start working with the client and their family to improve their situation. Sometimes the start point is clear but a lot of the time it can be hard to know where to begin. There is an implicit expectation and need for change and progress to happen quickly across many aspects of the client’s life. For some clients, the reality of being able to start planning to engage in some rehabilitation or to pursue a new work or social avenue does not feel easy. 

It is certainly harder for most to turn their goals into reality  than it is to discuss them in the abstract.  it is not uncommon that the client may themselves find it hard to get motivated to overcome barriers.
The case manager can feel a weight of responsibility to create some difference, to act, to implement… after all, they wrote a report with recommendations – a ‘clinical promise’ of sorts. Their notes and progress reports will of course be scrutinised along the way.
Many case managers began their careers in health or social care settings where there is a limited timeframe to make a difference for each person – patients in an NHS rehabilitation unit or on a ward predictably have to move on so that each service can take new patients and focus what it offers to best effect across a population of patients. Unavoidably, this creates pressure to support as much achievement and progress as is possible in whatever time can be had. This is the way many of us became used to working and the shift in focus when becoming a case manager can feel exciting but very different.
Working as a case manager in the independent sector offers a different opportunity, where what is provided can be shaped around each client and where the timeframe and approach can be tailored to the individual’s needs, aspirations, and abilities.

Alongside the experience, skills, clinical and professional knowledge exemplified in the CVs of case managers it is important to utilise powerful ‘tools of the trade’ including:

Time and pacing – for many and often very individual reasons recognising the value of time, grading, and pacing in the pursuit of positive change is important.

Degree shifts and incremental change – one small shift of the right kind carried forward can result in great change down the line. Very small, stepped changes can be a powerful way to build progress.

Quick wins and low hanging fruit – targeting priority areas which can be quickly and effectively addressed helps
to build momentum.  It also,  importantly creates motivation as well as trust and belief in the case manager and the process of
case management.

Individual and collective thinking - case managers often either form or join the MDT around the client. Apparently, it was Aristotle who coined the phrase “The whole is greater than the sum of the parts”.  Never is this more so than with an active and free-thinking MDT where the case manager can promote and facilitate collaborative thinking, whilst supporting the development of individual ideas and plans and bringing this all together to benefit each client.

Curiosity and inventiveness – an open minded and constant curiosity, coupled with innovative approaches which flex in response to individuality and context are needed in order to provide unique and tailored solutions to enhance a client’s rehabilitation progress. 

That mountain of potential for change, documented in the case management assessment report, does not all have to be conquered immediately. After all, as mountaineers know, making it to basecamp is an achievement in and of itself.
The ascent can be tackled another day, with good strategy and in small stages. Success may be positively impacted by waiting until the time is right, careful pacing, alternative routes, and a creative methodology. A team approach to tackle the journey with an inquisitive, innovative, and hopeful, but realistic outlook that balances the risks helps stack the chips toward a safe and positive result. 

Vicki Gilman
Founder of Social Return Case Management 
and BABICM Advanced Case Manager

The importance of
working with clients and their families

While the role of the case manager is to support their client, the involvement and needs of their partner and family can be fundamental to the situation being a success.

Here, Virginia Bowley, case manager with ILS Case Management, discusses how this can be difficult to achieve – but the end result can be hugely beneficial for all parties

Being a case manager, I have often wondered how I would react to having health professionals coming into my life and talking about many aspects of my personal and private life, with the details then being reported to others. 
What would it be like to give up any control over what I did because someone else thought it might benefit me? How would my partner react to time-consuming meetings and frequent contact with the case manager and other health professionals? 
This is what our clients have to go through when they instruct a solicitor to pursue a claim for personal injury. 
On one visit, many years ago, I was told that the couple only faced up to the reality of what had happened when I visited. They otherwise tried to mask the enormity of the change in their lives and lived tandem lifestyles which left the client feeling isolated by his wife and not supported. 

From high-flyer to carer
I worked with a client who sustained a spinal injury and whose wife had a very well-paid senior role. She was used to being in charge of matters and delegating tasks to others. She enjoyed her job and had worked hard to achieve her position. 
When her husband was injured, she wanted to be as involved as possible in his care and support which jeopardised her work prospects. As a result, she reluctantly decided to leave her job. She made this decision with real sadness, and it was a source of deep frustration for her.

I quickly needed to ‘tune in’ to what the client’s wife needed from me as the case manager. She was highly organised, time focussed and, frankly, quite intimidating! 

I decided to have a meeting with her to talk about what aspects she wanted me to do, and which she wanted to be in control of. I realised, to make this work and to avoid duplication of tasks, that excellent communication between us was of key importance. 
The client was struggling to come to terms with his catastrophic injury and sadly became very depressed, as a result it was difficult for him to engage with anything proposed. His wife was very keen to find something that might capture his attention and help him in his recovery. The difference in their personalities was stark. 
Given that I was my client’s advocate, and that I was not working for the client’s wife, I needed to reflect on what approach I needed take to effectively move things forward. We decided to work on hobbies that the client previously enjoyed, and with the help of an Occupational Therapist, agreed goals were drawn up to help him overcome the barriers he was now facing in doing what he used to enjoy. 
Thankfully, we were able to establish a working relationship where the client’s wife felt supported by me as case manager for the benefit of her husband’s rehabilitation.

Anger needing to be managed
On another case, my client was a father of four children. He was living with extreme pain following a road traffic accident in which he was injured. Despite being safe to be left on his own for short periods, he demanded that his wife stayed with him rather than go to work.
His children were not allowed to have friends in the house, for fear of him becoming angry with them, and he had a low tolerance to auditory stimuli meaning that the TV and any other form of noise had to be kept to a minimum at all times.  
The controlling behaviour had a devastating impact on his wife, who eventually stated that unless he accepted paid care support, she would leave him. The anguish my client’s wife was feeling was clear to see, as she had aspirations to progress her career in the educational field. However, the anger and determination in my client was also evident as he seemingly wanted to keep his wife from having any freedom. 
I had to carefully navigate my way through their seemingly unsurmountable differences in order to get the best result for my client and his family. It took time to resolve, but the wife’s ultimatum stirred my client into action and he did begin to realise that not only would he have lost the life he used to have, but he stood to lose his family as well. 

He reached a point where he was able to accept the importance for his wife to be able to return to work part-time, and he agreed that we could arrange for external paid carers to support him whilst she was at work.

Breaking through barriers
I have also worked with a client who required 24-hour care. He understood and accepted the need for care, but his partner constantly denigrated the staff and criticised their work. The client enjoyed an active social life often staying out very late which the carers accommodated. 
However, when it came to escorting the client on holiday to a music festival, the client’s partner stated clearly what she wanted to do with the time away which differed from the client’s expectations. This caused tension within the care package as the client wanted to experience the festival environment with his partner, which she did not always want to do. 
I worked closely with the team leader to try and resolve the issues raised by the partner, but there was always a deep sense of resentment from her regarding the cost of the staff, and a sense that she did not value them. I reflected on this and decided to talk to the partner to try and break through the barriers to her having a harmonious working relationship with the care team. 
It was a subject that required re-visiting several times and the care team required much support when they felt undervalued. However, through ongoing conversations
and sensitively raising the issues with my client’s partner, progress was made and tensions between her and the care team gradually lessened. 

Overcoming resentment
Another client I have worked with lived with his girlfriend who had become his full-time carer. She had become deeply resentful of how she was being treated by him and decided she wanted to leave. My client desperately wanted her to stay, but the more he tried to persuade her to do this, the more aggressive he became, which had the effect of pushing her further away. 
My task was to reduce the highly volatile feelings that were developing whilst not aggravating my client who had a quick temper. I could see the desperation in his partner’s demeanour, and could sense the sadness in my client when he realised that
he had shown no respect for his girlfriend and had treated her so poorly. He was so keen for her to reconsider and stay. 
Sensitive and timely discussions had to take place with both my client and his partner to enable them to both feel supported, listened to and to enable a way forward for them both. 

Understanding grief
When I volunteered for Cruse Bereavement Support, I studied how grief can affect us, and through my work as a case manager, I have observed that clients and their partners all appear to go through the different stages of bereavement for many years after the accident or injury has occurred.
In my role, I have always found it beneficial to take time to ‘tune in’ carefully to the dynamics of the relationship between clients and their partners and loved ones whenever I am in contact with them. 
Often, an email from a client’s partner can sound like there may be more they want to say, but they cannot or will not commit their thoughts to writing. In such cases, I will call them to allow them to talk things through more freely, and this gives me an opportunity to gain a clearer understanding and gauge what is troubling them. 
It can also convey the important message that as the case manager, I am eager to have as good an understanding as possible of the depth of feeling that both clients and their partners have. I often explain that if partners can say how they are feeling it can free up the client and others to speak more openly. 

Supporting couples to become stronger
Through my 20 years’ experience of working as a case manager with clients who have partners and loved ones, I have found that it is essential to ease into the relationship respectfully, to actively listen to their concerns without judgement, and to be mindful of the language I use to ensure it is not alien to them.  


Over the years, I have learned of the importance of working at the client’s pace and to give them and their partners time to come to terms with a different way of living that might be very difficult for them to accept. 


As case managers, we may well have a vision of how therapeutic interventions and care and support could help our clients, but they are often managing pain, confusion, discomfort, immobility, loss of freedoms and social isolation which can result in a variety of reactions to case management which always demands careful consideration and an open mind.

‘We’ll never be standing still, that’s for sure’

As A Chance for Life marks its 20th anniversary, NR Times learns how the case management  and rehabilitation business has grown into a leader in the North of England, and continues to grow and develop as it enters its third decade

From starting life in the spare bedroom of Louise Chance’s home in 2002 as a means to continue her love of supporting people with brain injury, case management company A Chance for Life has grown beyond all expectations over the past two decades - not least Louise’s. 
“It was just me, the plan was never to employ anybody,” recalls Louise. 
“But then as I got busier, my next door neighbour came in and did a little bit of secretarial work, and that was it. 
“Gradually you realise you need support. There were some peers who asked to join me and we formed a very small team, which has gradually expanded over the years to where we are today.”
Now, A Chance for Life Ltd has a team of around 80 people across the North of England and Scotland, with case managers, occupational therapists, physiotherapists and rehabilitation support workers working with adults and children with complex life-changing injury.
Having celebrated its 20th anniversary in 2022, the progress of the Cumbria-based business shows no signs of slowing down, with its acquisition of Neurocare Physiotherapy in 2021 and the impending creation of its OWL Barn service to continue to improve lives through specialist rehabilitation both highlighting the ambition of A Chance for Life in planning for the future. 
“I'll always be looking for opportunities for us to do even more, go even further,” says Louise. 
“My mum had her own market stall business and I was brought up on there from a very early age. I had all sorts of businesses before I was even 16, so it’s just in me, I think. 
“We’ll never be standing still, that’s for sure.”

The background that inspired a business
Having worked as an occupational therapist since 1988, Louise had become an established name in brain injury rehabilitation  in and around Manchester. Working at key sites including the renowned neuro-rehab specialist Highbank Centre in Bury, with the turn of the millennium, Louise began looking for her next move. 
“I loved working in brain injury, I absolutely adore brain injury, but I realised I wanted to fulfil more of what I knew I could do without being constrained by somebody else’s business model,” says Louise. 
“I didn’t want the constraints of a manager or organisation with goals or targets, it was about me setting those myself and knowing what I needed and wanted to deliver. 
“I felt I had a good clinical background and was very privileged in some of the places I had worked, and in 2002, it felt like the right time. It wasn’t an overnight thing, but over time I could feel things coming together.” 
By the early 2000s, case management was becoming more known and accepted within the world of personal injury, having previously been prominent in the United States, but not widely adopted within the UK. 
“There was really quite a buzz in the brain injury and medico-legal world at that time,” says Louise. 
“There was a real explosion in research from the late 1990s, which meant we knew and understood much better what we could achieve in rehabilitation.” 
“So it was a very timely way of starting my business, there was a lot of good energy around and it felt like the right time.”
Initially based at Louise’s home in Bolton, supporting clients in an increasingly wide geographical area, A Chance for Life took on its Cumbrian roots when Louise was tasked with producing an acquired brain injury pathway for Lancashire and Cumbria. 
“This really showed me that there was a need for more training, some co-ordination, we needed more specialists in Cumbria for the treatment of ABI in particular,” she recalls. 
“While it is a very challenging place to start a small business, in a rural area without much infrastructure, it was clear the resource was very much needed.”

Specialist support across the North 
In moving to Penrith, A Chance for Life has brought vital and much-needed provision in brain injury and complex care to Cumbria and the wider North of England. 
With a team of specialist case managers and therapists, and a separate team of rehabilitation support workers, the business has worked with clients as far afield as Inverness, the Isle of Man and everywhere in between to bring high quality, person-centred support and rehabilitation to those living with life-changing injury. 
Its core case management business continues to win new clients based on the strength of its reputation; a reputation which is shared by the specialist occupational therapy and neurophysiotherapy services the team also offer. 
The business is also a stand-out name in the sector through its provision of in-house, CQC-registered rehabilitation support work, with its specialist team established in 2011. In 2021, the team delivered 52,660 hours of rehabilitation support. 
While many working in healthcare struggle to find support workers amidst the ongoing recruitment crisis and growing pressure on resources, the fact A Chance for Life has its own dedicated team means they regularly work with a host of businesses across the sector - including other case management companies.
“I saw an opportunity to develop the support side of the business, and directly employ our own support workers, driven by need. If we hadn’t, we would struggle to carry out the therapy and the case management with some of our clients in Cumbria, because we were lacking that skillset,” says Louise. 
“We provide anything from 24-hour packages to smaller packages of around 16 hours a week, and that has now grown into about half of the business. I’m very proud of the work we do here, and the need we are helping to meet through the excellent work of our team.”
While the business has developed over the past 20 years, so too has its team, with several long-serving members of staff who have grown and developed with A Chance for Life.
“We've been able to provide career progression for our support workers in particular, there are a number of staff who have progressed as they gain skills and experience, they move into team leader positions in areas of responsibility,” says Louise.  
“We have one person who started as a support worker, she went to team leader, and she's now my registered manager. We believe in supporting our people to develop their skills and do the best they can in their role and their careers.”
And as well as its team and clients, Louise is also keen for her business to support its local community in Cumbria by becoming an advice and signposting resource for anyone who needs it. 
“With the Cumbria hub, I want people to pick up the phone and say ‘I’ve seen this on your website, can you tell me where to find this, can you help with this?’,” says Louise. 
“I’ve always wanted us to be an organisation where people can ask us something and we’ll signpost and point them in the right direction. I want people to use our expertise to help them and their families when they need it.”

I'll always be looking for opportunities for us to do even more, go even further

The challenge of - and response to - COVID-19
While the challenges along the way in building a business are many and frequent over the past 20 years, Louise points to COVID-19 as being the most significant. 
“While in the early days of the business, when I was setting up our Cumbria hub in a very rural area with little resource to support our service and a lack of infrastructure, that was a challenge. I’m very pleased I did it, but it was a huge challenge,” says Louise. 
“But with COVID, it was a challenge like no other, like nothing any of us had seen, and beyond anything we could have planned for. It was certainly the biggest test for me as a businesswoman and as a clinician.”
When the pandemic hit in March 2020, many businesses closed their doors, others retracted or condensed services, and countless more struggled to cope with the unprecedented challenges and guidance that changed almost by the day. 
But for Louise, it demonstrated the strength of the infrastructure of the business, and how well shaped it was to respond to the most unforeseen of circumstances. 
“We were able to maintain our service throughout COVID. Our office was open, we were issuing PPE left, right and centre - in the early says paying £100 for a box of gloves! - and making sure our staff were safe, our clients were safe, and our service was still being delivered,” she says. 
“The admin team were in every day, offices rearranged and meeting rooms repurposed to allow for distancing, the rotas were all managed, nothing slipped. That is the backbone of our whole operation and because that was strong, our service remained strong. 
“I am so proud of the work we did. We had over 100 clients out there relying on us, we had 24-hour packages that were maintained all the way through. If we had a client who needed overnight care who got COVID, then our staff would stay with them throughout. 
“It was a privilege to be able to be with our clients during that time, it was very humbling.
We were able to support clients through COVID during times when families were not able to visit, we were playing a very privileged role.
“But we got through it with real teamwork.
Teamwork within the business and then, once we could work with the families again through the creation of support bubbles, teamwork with the families.
“It was quite phenomenal and it does make me emotional thinking about it. The responsibility for staff livelihoods, for client and staff safety, was huge, but despite the challenge, we did get through it. I am a big believer in looking after each other and am really proud of the work we did during that time.”

Continuing to grow and develop
Having marked its 20th anniversary year - with celebrations continuing until  May 2023, which will raise money for the Great North Air Ambulance - A Chance for Life has taken a welcome opportunity to reflect on its many achievements. But with so many exciting plans yet to come, the achievements look set to continue. 
With the acquisition of Neurocare Physiotherapy, which has worked across the North West since 2003 - and whose own 20th anniversary is this year - A Chance for Life broadened its offering further, building on its core services to now be able to offer highly specialist physiotherapy treatment  for people with a wide range of neurological conditions including stroke, multiple sclerosis and Parkinson’s disease.
Work is also underway to create the OWL (Onward With Life) Barn in Cumbria. This will be a social enterprise, which will focus on a range of recreational activities to support rehabilitation including cooking, horticulture, woodwork and animal husbandry.
“It’s going to be somewhere for people with complex injury for assessment, treatment and a social community. All of our work will be therapy-led, underpinned by clinical reasoning,”
says Louise.
“This is a very exciting project, we’ve been planning it for a long time and work began just before COVID hit, so it has taken a while - but we are looking forward to unveiling it in the coming months.”
And while A Chance for Life continues to develop its resource, the now 20-year- old business is also concentrating on the development of its own infrastructure to help lead it into the years ahead. 
“I think when you get to this stage, you do have to look at the sustainability of the business, building up the skill mix so we can carry on for many years to come,” says Louise. 
“We’re building the infrastructure and increasing the skillset at a leadership level, so it is not reliant on me. We have the systems in place now and I’m keen to carve out a bit of time so I can do some research. 
“But we will continue to look for the opportunities, like I’ve always done, and continue to do what we do for our clients.We’ll never be standing still.”